| This is sweet Mylee Grace. Mylee has Chiari and many of the problems associated with it. She has a feeding tube because everything she eats goes into her little lungs. She had a decompression at 17 months of age. Although she has developmental delays, her family adores every single day with her and each little accomplishment that she makes is a momentous occasion ! Her parents appreciate and are thankful for the little things. We hope that one day, Mylee will be one of the first campers at our camp! Her beautiful smile is an inspiration to us all! |
| What does chronic illness look like.... Most of these amazing kids put on a happy face so that others won't worry or know that they are in pain. |
| This is Kara. She is absolutely beautiful and you would never know by looking at her that she has had 17 brain surgeries. Her spirit is amazing and she is a wonderful artist. Most recently, she was diagnosed with a tethered brain stem resulting from the many surgeries that she has endured. She is a senior in High School and struggling with her career path which is impacted by her physical pain and symptoms. Keep smiling Kara!!!! |
| The Girls who started it all! |
| Kasie Kellie Katelyn |
| In early Oct. on the plane out of Laguardia, we met Stephen Baldwin. He is an amazing Christian and gave us a copy of his book. It is AMAZING. He took extra time to talk with us and is praying for us. Pray for him and his ministries. |
| He encouraged Kasie to begin writing a book about our lives with Chiari and how it has impacted our family and our faith throughout this journey. |
