| The goal of Miracle Wish is to provide a camp for children with rare diseases. We are also exploring other groups to attend the camp. There are many programs in place to assist families and their children with more common illnesses. Many times, children with rare illnesses and their families are left to feel alone and isolated. We want to change that by not only providing a fun-filled camp experience, but also, a support system to help families cope with the unexpected changes that chronic illness brings to the family unit. |
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| Help us give medically challenged kids their wings so that they may fly to conquer their dreams! |
| Our family is affected by a condition called Arnold Chiari Malformation. In laymen's terms, the bottom part of the brain, the cerebellum, herniates out of the skull. Pain and neurological symptoms are a daily occurrence. We have also been diagnosed with Ehlers Danlos, a collagen defect. Collagen is the "glue" that holds the body together and important in the embryonic stages when the skull if forming. This has truly been a journey for our family and we have prayed for God to show us our "purpose" in all of this. We believe that the purpose is to make a difference for other families who struggle daily with these conditions. This condition can be devastating to adults as well as children. Because I have the condition, I understand all too well what my daughters must go through every day. Our youngest daughter Katelyn received her diagnosis at a much younger age than the rest of us. She is not allowed to do many things that most kids take for granted. Kasie, our oldest, had to give up cross country in High School and Kellie, our middle daughter loved being on the dance-line but that caused her symptoms to increase. After watching her little sister have to give up so many activities, Kasie decided that she wanted to start a camp for kids. A camp where kids could be monitored medically if necessary and could participate in fun activities and not feel "different". Katelyn read a book in school called Sadako and the thousand paper cranes. It's about a little girl who got sick after the bombing in Japan. She loved to run and had to give that up because she began to have dizzy spells. She learns that she has leukemia from the atom bomb. There is an old Japanese legend that if you make 1000 paper cranes, you get a miracle wish. Sadako passes away before she makes the cranes, but her schoolmates make the remainder of the cranes and bury them with her. Katelyn was so touched by this little girls courage. She began making paper cranes and Kasie had the idea to sell them to raise money for the camp and also for organizations that help people with Chiari. |
| About the founders of Miracle Wish |
| 501 (C) 3 Organization |
| Kasie Kellie Katelyn |
| Miracle Race for Mylee Grace raises $1000 |
| Ein:06-1805926 |